Wednesday, February 28, 2018

RARE IS SPECIAL!! πŸ’–πŸ’œπŸ’™πŸ’šπŸ’›πŸ–€ Feb 28 is Rare Disease Day. It’s a day to raise awareness of the nearly 6000 rare diseases that people around us battle daily, to support research for better treatments for them, and to celebrate how special and amazing these people are in our lives! They are fighters!!! . This is a picture of my adorable little rockstar of a niece, Shylah. Shylah is one of the 30 million people living in the US today with a rare disease. Shylah has hyperinsulinsim, which puts her at a daily risk for severe hypoglycemia and brain damage. . Along with most rare diseases Shylah’s hyperinsuinism has few treatments, and no cure. Despite her odds, Shylah’s is unstoppable! She is the most energetic, magical unicorn of a girl. She loves to sing, she is constant smiles and as you can see is so adorable. She is also quick as a whip and has an answer for everything! I made this little piece for her to show in her class, because rare is special! She deserves to feel special every day, and extra special today! Also, is she not beautiful?!!?? 😍😍😍 Love you Shylah! 😘😘 ———————————- #rarediseaseday #hyperinsulinism #family #showyourrare #careaboutrare Art by Jason Naylor